There is a lady called Jean who lives in Macclesfield and picks up all the cards from the printers, checks them, then packs the cards with a lot of love. I want her to wrap my christmas presents!!
Tuesday 30 November 2010
How we wrap our cards so beautifully
There is a lady called Jean who lives in Macclesfield and picks up all the cards from the printers, checks them, then packs the cards with a lot of love. I want her to wrap my christmas presents!!
Friday 19 November 2010
Neurofibromatosis
What a mouthful, I had never heard this word until 18 months ago, but now it is part of my life 24 hours a day.
I have never spoken about my daughters genetic disorder in my blog, but I just feel the time is right to do so, to maybe help others in the same situation, it is always good to hear about someone who is going through the same experience as you.
Well where do I start.
Never in a million years did I think there was anything wrong with my daughter, she was a terrible sleeper, incredibly clingy and adorable. Then one day I just asked a friend of mine who is a doctor to look at my daughters birth marks, as my other 2 had molluscum and she was just checking on that. Ahhh she says these are cafe au laits, what a lovely name for a birth mark, what she didn't tell me, probably a bit afraid of doing so. Is if you google cafe au laits you world falls apart. I still remember that evening looking at the computer screen in floods of tears, saying no this just cant be right.
More than 5 cafe au laits is a pretty definite sign that your child has neurofibromatosis, a genetic disorder, which unfortunately when googled brings up very scary images. So there I was devastated, but then I decided this can not be the case, so booked to see my GP deciding she just cant have NF. When they brought in a support worker into the consultation room I realised that she most probably did have it.
The next few hours were pretty damn awful, I will never forget how I felt and a horrible horrible (in nice words) man made things much worse. Picture this, a mum with 1 year old and 3 year old in floods of tears is approached by an old man who attacks her for getting her kids out of the wrong side of the car on a dead end street and calls me an irresponsible bad mother, I laughed about it afterwards, but he did get a huge mouthful from me at the time.
Anyway living with NF, she has had fantastic care. She is looked after by the geneticist at Manchester Children's Hospital who is incredibly knowledgeable on the subject of NF, a consultant paediatrician and the eye hospital. If anyone wants any info on these people just contact me.
But living with NF can be scary, we are flying to Manchester next week to visit the eye hospital for her regular check to see if she does not have any tumours behind her eyes, I am sure she won't, but it is still upsetting and she hates going, she can remember last time with all the tests. You always wonder if she is reaching her development targets as 60% of kids with NF have learning difficulties, but so far so good.
I think the scariest thing about NF is you will never know how bad it is going to be or how good, but my hubbie's attitude and mine, is if everyone had more than the most minor symptoms of NF everyone would have heard about it. We will ensure that she has the confidence and self esteem to deal with any of the symptoms she might get in later years. She will know she is beautiful even with the birth marks and fibromas, as beauty is from within and she is one beautiful little girl and we love her with all our hearts.
xxx
I have never spoken about my daughters genetic disorder in my blog, but I just feel the time is right to do so, to maybe help others in the same situation, it is always good to hear about someone who is going through the same experience as you.
Well where do I start.
Never in a million years did I think there was anything wrong with my daughter, she was a terrible sleeper, incredibly clingy and adorable. Then one day I just asked a friend of mine who is a doctor to look at my daughters birth marks, as my other 2 had molluscum and she was just checking on that. Ahhh she says these are cafe au laits, what a lovely name for a birth mark, what she didn't tell me, probably a bit afraid of doing so. Is if you google cafe au laits you world falls apart. I still remember that evening looking at the computer screen in floods of tears, saying no this just cant be right.
More than 5 cafe au laits is a pretty definite sign that your child has neurofibromatosis, a genetic disorder, which unfortunately when googled brings up very scary images. So there I was devastated, but then I decided this can not be the case, so booked to see my GP deciding she just cant have NF. When they brought in a support worker into the consultation room I realised that she most probably did have it.
The next few hours were pretty damn awful, I will never forget how I felt and a horrible horrible (in nice words) man made things much worse. Picture this, a mum with 1 year old and 3 year old in floods of tears is approached by an old man who attacks her for getting her kids out of the wrong side of the car on a dead end street and calls me an irresponsible bad mother, I laughed about it afterwards, but he did get a huge mouthful from me at the time.
Anyway living with NF, she has had fantastic care. She is looked after by the geneticist at Manchester Children's Hospital who is incredibly knowledgeable on the subject of NF, a consultant paediatrician and the eye hospital. If anyone wants any info on these people just contact me.
But living with NF can be scary, we are flying to Manchester next week to visit the eye hospital for her regular check to see if she does not have any tumours behind her eyes, I am sure she won't, but it is still upsetting and she hates going, she can remember last time with all the tests. You always wonder if she is reaching her development targets as 60% of kids with NF have learning difficulties, but so far so good.
I think the scariest thing about NF is you will never know how bad it is going to be or how good, but my hubbie's attitude and mine, is if everyone had more than the most minor symptoms of NF everyone would have heard about it. We will ensure that she has the confidence and self esteem to deal with any of the symptoms she might get in later years. She will know she is beautiful even with the birth marks and fibromas, as beauty is from within and she is one beautiful little girl and we love her with all our hearts.
xxx
Chilly November in France
MY WEBSITE - I have had a few comments lately that I am not as user friendly as Hallmark or Moonpig, which I acknowledge is true. But my aim is to be a bespoke stationery service, where you can get the card that is perfect for you. I spend a lot of time and thought making sure the cards are just right for the client, from designing multiple proofs, to giving advice on the best photo to use. I also design matching items on request, for example prayer cards, order of service and love every minute of it. I do get some amazing feedback which makes it all worth it.
The big but is, do I need to update my site. If I provide an online proof service, I know by experience the cards just dont look right if you just place them straight on the card - I spend time altering text size, spacing, cropping photos, even changing the shape and style of the card to make sure it looks just perfect.
So the question is how do I change my website but still retain the CocoCards unique personal touch.
MY LIFE - france is still the place I want to be, it can be difficult sometimes running the business by email and phone, but with the great team I have it is getting better all the time. The problem is I enjoy my home life more here, so the temptation to cook beautiful food - no convenience food here! or dig my vegetable patch is much greater here. I even bake my own bread now (slight exaggeration here - as I use a bread machine!)
If anyone is ever tempted to emigrate, I say do it, the kids are happier, we are happier. You realise what is important in life when you move to rural France - family and friends. A life where you consider your environment, eat seasonal food, grown your own food, enjoy the countryside. I love it. My children see so much of their father now, he walks them to school every morning, picks them up every afternoon, helps with their french homework (as I can't), we all sit down and eat together two or three times per day.
It is all so simple but yet so good.
The big but is, do I need to update my site. If I provide an online proof service, I know by experience the cards just dont look right if you just place them straight on the card - I spend time altering text size, spacing, cropping photos, even changing the shape and style of the card to make sure it looks just perfect.
So the question is how do I change my website but still retain the CocoCards unique personal touch.
MY LIFE - france is still the place I want to be, it can be difficult sometimes running the business by email and phone, but with the great team I have it is getting better all the time. The problem is I enjoy my home life more here, so the temptation to cook beautiful food - no convenience food here! or dig my vegetable patch is much greater here. I even bake my own bread now (slight exaggeration here - as I use a bread machine!)
If anyone is ever tempted to emigrate, I say do it, the kids are happier, we are happier. You realise what is important in life when you move to rural France - family and friends. A life where you consider your environment, eat seasonal food, grown your own food, enjoy the countryside. I love it. My children see so much of their father now, he walks them to school every morning, picks them up every afternoon, helps with their french homework (as I can't), we all sit down and eat together two or three times per day.
It is all so simple but yet so good.
Subscribe to:
Posts (Atom)